Tag: mod

mothers of type 1 diabetics

To the Mothers of Type 1 Diabetics –

To the Mothers of Type 1 Diabetics –

It’s often that we hear how heroic people with Type 1 Diabetes are, but it’s not very often that we give thanks to the ones behind the scenes that help us get to where we are today—which include the t1d mothers and fathers.

“This disease takes a team of people to manage it, and when it all seems to be falling apart around us, it’s thanks to you for holding us together.”

We couldn’t do it without the people who love and support us.

So this is for all the mothers of type 1 diabetics for Mother’s Day:

Thank you-

To all the mothers who’s hearts were shattered into pieces the day you heard the news of diagnosis but told us everything was going to be okay. The mothers who have found and continue to find the strength every day to fight this disease along with us—especially on the days we feel weak. The ones who get up throughout the night and instinctively check our blood sugars to make sure we make it through to the morning.

Mothers who advocate for us and give all of us a voice in this world. The mothers who get up every day exhausted and take on whatever the day brings, just hoping that our day is a little better than the last. The ones who encourage us to reach for the stars and never let diabetes stand in our way.

Mothers that are always checking up on us and letting us know that you care.

The mothers who have to be prepared at all times on how to handle life threatening situations if and when they occur. The one’s who try to stay as calm as possible during difficult moments when deep down you’re breaking.

Mothers who have to fight tooth and nail for authorizations and approvals through insurances; for—prescriptions, doctor visits, medical devices, and insulin. The ones who have to fight back tears when administering insulin, knowing that it’s the only thing keeping us alive. The mothers who always have to plan everything ahead of time. Whether it be our meals, snacks, emergency essentials, making sure insulin dosages, sensor changes, and the list goes on.

Mothers who carry guilt from not knowing if you’re doing a good job – (but believe me you’re doing amazing).

The mothers who are carrying the weight of the world on their shoulders; Day in and day out, 24/7, 365 days a year. Whether you’re new to this disease or you’ve been helping manage a type 1 diabetic for many years; what you all have in common is that you are all heroes. You are trying with everything you have at a disease that ultimately cannot be controlled.

You were unexpectedly handed a difficult challenge because you are STRONG enough to endure it. And you rise to the occasion every day without hesitation. There’s really nothing more you can ask for.

Thank you to all the mothers of type 1 diabetics from the bottom of my heart! You are all appreciated more than you know. HAPPY MOTHER’S DAY!!!

 

Sincerely,
A Type 1 Diabetic


share a story


 

I'm a D-Mom Battling Type 1 Diabetes Alongside My Hero

I’m a D-Mom Battling Type 1 Diabetes Alongside My Hero

I’m a D-Mom Battling Type 1 Diabetes Alongside My Hero

a heart set on pilgrimage (Blog) | Instagram | Facebook

I am a woman.
I am a daughter.
I am a sister, a cousin, a niece, a friend, a ballet teacher, a one-person business owner.
I am a wife.

And twelve years ago I voluntarily signed up for motherhood too. I am the mom of two beautiful girls. I adore being their mom. But one year and four months ago, my previous notion of motherhood underwent remodeling and I involuntarily got signed up for a title I wasn’t even aware existed.

I became a D-Mom. 

I wish I could say that the D stood for something like Dazzling or Diligent or Delightful or Dynamic or Darling or Desirable or…

Instead, the D stands for (daunting, dangerous, defiant, depreciating, disheartening) DIABETES.

On 9 March 2015, our eldest daughter was diagnosed with Type 1 Diabetes. And just like that, our family of four got to wave our pre-diabetes lives goodbye. Together we set out and embarked on a whole new, unfamiliar and scary journey.

A good deal of who we were and where we were heading changed…at the same time much of all of that stayed the same. We still are altogether the same people we were before my daughter’s diagnosis…except…we are…altered.

Redesigned. Revised. Modified. Remolded. Expanded. Evolved.

On a daily basis all four of us get to cultivate bravery and courage; fight battles against worry and all-consuming fear; display our best mathematical skills; employ our finest planning and administrative abilities; pray for a cure…and enough grace and strength to get us through the present day; speak a language stained with medical jargon; fight battles against worry and all-consuming fear… Oh. I already said that.

The moment Type 1 Diabetes, an incurable, chronic, autoimmune disease, arrogantly waltzed into our lives, our lives were altered forever…on various levels:

Even on the level of Motherhood. I went from being a Typical Mom caring for her flock to being a typical mom AND an on-call day/night nurse AND a medical supervisor AND a nutritionist AND a worrier aspiring to become a warrior instead AND a mathematician AND an assistant pancreas AND an advocating voice AND an awareness spreader AND a cheerleader AND a night time blood glucose checker AND a silent crier in the shower AND a researcher AND an educator AND a calculator AND a well timed clock AND a prayer warrior AND a diary keeping track of doctors appointments AND a prescription fetcher AND a co-glucose-tabs-and-snack-carrier AND a double checker of all things T1D related in our household AND a triple checker in that regards AND a quadruple checker for just in case AND an occasional tired and emotionally drained individual.

Yep, I became that mom. I became The D-Mom. My husband became The D-Dad. We became D-Parents. Our youngest daughter became The (supportive and encouraging) D-Sister. My oldest daughter became The D-Warrior. We became a D-Family.

The day my daughter was diagnosed I met Type 1 Diabetes face to face for the very first time. I didn’t know a single person with this disease. I didn’t know a single thing about this disease. Boy, has that changed…

I have learned that Type 1 Diabetes:

Is time consuming;
That it requires daily maintenance 24/7, 7 days a week, 365 days, non-stop, no breaks, zero time off, no prospect of a vacation…ever;
It is a bulk of never ceasing math;
It is quarterly trips to the endocrinologist and a list of specialists you have to work your way through every year;
It is uncountable trips to the pharmacy;
It is struggling with health insurance companies;
It is constant loads of info;
It is to wave certain aspects of freedom goodbye;
It is coming to terms with a chronic disease that will never go away;
It is seeing your daughter prick her finger up to 10 times a day;
It is trying to figure out how stress, a growth spurt, puberty, illness and allergies, heat and vigorous exercise might impact her blood sugars on a single day;
It is to watch your daughter stick a needle in her leg or stomach and give herself 5-7 shots of insulin daily;
It is to hold her and cry with her when she has had a hard day;
It is tiring;
It is chaotic;
It is frustrating;
It is emotionally draining;
It is lonely;
It is hard;
Sometimes it is very scary;
It is ridiculously expensive;
It is to mourn and grieve the loss of a life without diabetes;
It is to stare fear in the face every new morning and then to choose to not be overwhelmed or be defeated by It…Until the next morning when we start this battle against fear all over;
It is a phone call from the school to inform you to come fetch your child because her blood sugar is too high and it won’t come down;
It is to get up at night to test your child’s blood sugar when she is sleeping;
It is to know how quickly you can find yourself down in the valley of the shadow of death, and it is to cry for those families who made one last trip there and came out having had to leave someone behind…

For weeks after my daughter’s diagnosis:

I functioned on auto pilot. I was numb. I was stunned. I was completely overwhelmed by every aspect and detail of this disease and the implications it held for my daughter. The impact it had on her daily life was heartbreaking for my mommy heart to bear witness to. Every day I get to watch my daughter live with a complicated and high maintenance autoimmune disease. Every day she is presented with challenges and demands that comes with this disease. Every day she has to manage this disease in order to stay safe…and alive. Every day. Not some days or most days. But. Every. Single. Day.

BUT, before it gets too depressing…

Being a D-Mom is:

To watch the bravery unfold;
It is to witness courage manifest;
It is to see a fighting spirit being cultivated;
It is to know that there is Grace enough for the steps of each day;
It is being “hard pressed on every side, but not crushed, perplexed, but not in despair”;
It is to hear a small young voice being taught to advocate, direct and teach;
It is to experience the expansion of one’s boundaries of understanding and heartfelt empathy for other parents and families whose children are living with unseen chronic diseases.

I am very aware that we are not alone. There are thousands of brave children doing Type 1 Diabetes around the globe. Every day. And there are thousands of D-Mom ‘s and D-Dads who care for and support their children day in and day out, finger prick by finger prick, shot by shot, pump site change by pump site change, endo appointment by endo appointment.

Even more so there are millions of people who live with other unseen chronic diseases. I never used to know that almost 80 autoimmune diseases existed. Most of these diseases I haven’t even heard of. And for every single one of these people living with one (and sometimes even more than one) of these diseases, there was that moment when they heard their diagnosis for the first time; and a journey that began which they never imagined they will embark upon. There are millions of people with stories to tell. I remind myself of them often. Because my heart has embraced a new level of empathy I never knew was possible.

I’ve learned so very much these past 16 months. I’ve met incredibly brave little people fighting big health battles. I’ve met brave D-Mom ‘s and D-Dads, D-sisters and D-brothers, D-Warriors – young and old. And they are all so much more than this disease. Our family is more than this disease. So is my daughter. So am I.

I have discovered that I still am that Typical Mom I used to be – in spite of the perception that I lost her somewhere. That Typical Mom who loves, and hugs, and disciplines, and lose her temper, and give little backs back rubs at night, and sing wake-up songs in the morning, and oversee (low carb) lunch boxes, and buy groceries (and testing strips), and kiss little cheeks (and little poked fingertips), and whisper I-love-you’s, and reinforce the importance of manners, and bark at clothes lying on the floor, and cuddles her babies… Yes. I still am her. Perhaps an altered and evolved version of her, but I still am her.

I am a woman.
I am a daughter.
I am a sister, a cousin, a niece, a friend, a ballet teacher, a one-person business owner.
I am a wife.

I am a D-mom.


share a story


 

Mother Of a Type 1 Diabetic (My Mother's Perspective)

Mother Of a Type 1 Diabetic (My Mother’s Perspective)

I asked my mother to write about my diagnosis and the years following. I’ve always wanted to get her perspective as being a mother of a Type 1 Diabetic. Now that I’m a mother, I can empathize with a mother’s love and how far it will go. I wanted her to share her thoughts, fears, and doubts. Now that I’m older and wiser I’ve been able to mourn the loss of the life that didn’t consist of diabetes—and close that chapter in my life. Finding out that diabetes has made me who I am. That when I thought I was handed the wrong card, it actually led me to where I was meant to be. It’s made every success, achievement, or victory just that much sweeter.


Mother Of a Type 1 Diabetic: (My Mother’s Perspective)

 

As a mother your first instinct is to love and protect, that is what I sought out to do. From the day she was born, I felt an overwhelming sense of obligation to fulfill.

But nothing prepared me for what life had in store. In 2002 when she was at the age of 12, I woke in the middle of the night to my child rocking in our recliner. I found it quite odd and I asked: “Brittany what’s wrong”? She replied, “mom I have no saliva and I’m very thirsty”. I knew then something was terribly wrong.

I took her of course to the emergency room. We sat there for what seemed like an eternity. I was told she had to be transported to All Children’s Hospital. Her blood sugar was over 900! By the grace of GOD, she didn’t slip into a coma. That was the day that changed our lives as we know it—even more so for hers.

It felt like someone ran me over. “Type 1 diabetic?” I asked in disbelief. “For how long?” Forever I was told. I didn’t know what to do. I was now a mother of a Type 1 Diabetic, and trying to process all of this at once. I knew nothing about this disease, for this was all new to me. This child that I vowed to protect, I couldn’t protect her from this. I felt like I had failed her and gave her this burden. I didn’t know quite how to feel. I was angry, hurt, and utterly scared for her.

It was life changing. I didn’t know how to keep it together but to see her face look at me, all I knew was that she needed me for strength. I watched her sleep every night, I set my alarm clock because I had to wake her to make sure her blood sugar didn’t drop. I was terrified! This child is my world and I learned quickly how serious this was.

As she grew older of course, like any teenager would she resented being a Type 1 Diabetic. It’s hard enough trying to understand life especially when you’re coming into your own. There’s enough pressure on kids and I tried understanding the pain of what she was feeling. No one her age that she knew was going through this. Having to take injections every day and checking her blood sugar several times a day. Being a mother of a Type 1 Diabetic was hard especially when she was growing up. I knew how difficult it was for her during these years being a Type 1 Diabetic. I wanted to take this from her but I couldn’t.

She was rebellious as all teenagers but more so in the fact, I don’t think she felt normal or understood. I watched her go into the very dangerous low numbers. It was tough because she was incoherent, I couldn’t get her to eat or drink anything. I would call the paramedics and it would take sometimes 20 min. for my baby to come back. There’s nothing more frightening in the world to fear that your child could slip away from your fingertips in the blink of an eye.

It is an absolute life changer, however, it’s not a death sentence. I’m truly grateful we survived those close calls. Looking back I wish I had educated myself more, was involved in support groups and learned more about diabetic cooking tips. I could have never planned for this, but I dealt the best I could and stayed strong for her.

My beautiful daughter has overcome huge obstacles and knows the adversity and the many challenges of this disease. I admire her for her strength and her ability to turn a negative into a positive. Her beauty not only radiates on the outside but on the inside. Her devotion to this cause is not only helping those who need the support, education but also striving for a cure.

Mother Of a Type 1 Diabetic: (My Mother's Perspective)I know that because of her energy and drive, she’s going to make a difference. I believe she has found a purpose in this life—that some of us search for in a lifetime.

To all those battling diabetes you’re not alone in this fight.


share a story