Tag: mother of a diabetic

type 1 parents

To All The Type 1 Parents Out There

To All The Type 1 Parents Out There

By: Kathryn Julian


I’m a teacher, mother, wife, and daughter. I am also a type 1 diabetic.

For the nearly 30 years I have navigated this disease. I have memories of mixing clear and cloudy, blood drops the size of Antarctica, the fist insulin pump trials, and of course the constant doctors appointments reminding me of all the horrors this disease can cause if gone uncontrolled. Through it all, I had the unwavering support of my two greatest advocates, my parents.

My mom and dad had no idea what this disease was when their baby girl was diagnosed. They always provided me with the best care, the best doctors, the best equipment they could.

When something new came out that could make my life a little easier my dad worked a little harder to get it for me. My mom measured my carbohydrates for every meal and always made sure I had extra snacks.

I remember in 7th grade my dad stayed the night in a hotel near the campground where my 7th grade field trip was just in case I needed him. Just in case something went wrong. But, they let me go….

I remember when I left for college and the excitement that I felt. I couldn’t wait to go. Many years later, I learned the fear my parents had. They weren’t sure if I would be alright. They worried everyday. But they let me go…

I remember when I wanted to move to the big city, work in an inner city school, and get my own apartment without roommates. My parents never discouraged me, never told me the fears they had of me living alone. They let me go….

When I was 24 I wanted to travel the world during summer break. My parents helped gather glucose tablets, extra pump supplies, syringes, and test strips. They were beyond terrified their daughter was traveling to third world countries. They never told me their fears. They let me go…

At 26, when I met an amazing man, he asked me to marry him. My life would now be shared with someone else, and for the first 26 years my parents worried day in and day out about me being alone, I now had someone at my side. The fears they had were still there but the burden was lifted a bit….

That following year my husband and I found out we were pregnant. It was a healthy pregnancy, my daughter was born perfect, without complications. I never knew the burden my mother felt. The fear she had…

A few years later my mom told me how scared she was through the whole pregnancy. She, told me how much she worried. I never knew.

Right after she told me her fears, I told her I was pregnant again. My poor mother smiled through the whole pregnancy, hiding her fears from me. But now, at 33, I knew she was scared. She wasn’t fooling me anymore. But, she never told me. She supported and encouraged me the same way she had my entire life. My second daughter was born this past May. She too, like my first, is perfect.

My mom and dad taught me never to let this disease stop me from doing anything. They provided me with the support, encouragement, love, and strength to endure some very dark days. They have always been there for me.

Now, a mother of two daughters myself, I can’t imagine the fears they had while I grew up. I was three years younger than my oldest daughter when I was diagnosed.

I have thought often about the strength my mom and dad had in raising me before the technology was readily available. How they let me live my life. They taught me that diabetes was just a part of me like the color of my eyes.

I can never thank them enough for the life they have given me. But, I can continue to live my life the way they want me to.

So, to all the type 1 parents out there, who have raised their children to be fearless, strong, and determined. It is because of you this disease won’t stop us. There aren’t words to thank you enough.


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Mother Shares What It's Like To Battle Type 1 Diabetes Alongside Her Son

Mother Shares What It’s Like To Battle Type 1 Diabetes Alongside Her Son

Dear Type 1 Diabetes,

You arrived completely out of nowhere. A horrible monster that has taken up residence with my son. You’re aggressive and harmful and you won’t go away. You follow my son everywhere. You’re there when he eats, you’re there when he plays, when he goes to school, and even while he sleeps.

I can’t control you monster, I can only adapt everything in my life to cater for you and “manage” your existence.

Why couldn’t you have chosen me instead of my sweet innocent child?

I wish I could take you from my son but I can’t. Instead, I watch your every move. I anticipate your next attack, and prepare to manage your fury.

We feed you insulin several times a day. Sometimes that’s enough but sometimes there’s no telling what you will do next. There are no rules. You keep quiet for a while and just as I think I have got some kind of control you will strike!

Mother Shares What It's Like To Battle Type 1 Diabetes Alongside Her Son

We have a machine that makes the balance between life and monster less painful but it’s still there, forever waiting.

I pray that you will leave and never come back. The new machine allows me days where I can almost forget that you’re here, and then other days where I catch myself looking at my beautiful boy carrying this heavy monster on his back and it makes me weep. I almost mourn the past. The freedom and innocence that have gone will never return.

I check my son regularly to see what damage has been caused by the monster who chose to live with us. Daily we prepare for battle. Daily we pray for an antidote that will kill the monster and free my son of its burden.

For now, my son is strong and wise but I fear the day he leaves our home to live on his own with the monster.

Mother Shares What It's Like To Battle Type 1 Diabetes Alongside Her Son

A parent wants to protect their child, but I have to watch as my son battles 24-hours-a-day. This is his life. I can only stand on the sidelines and offer my support and my love. I wish I could offer a cure and rid my baby of this horrible monster.

I wish it had chosen me.

 

—Angie Alexander

 


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Mother Of a Type 1 Diabetic (My Mother's Perspective)

Mother Of a Type 1 Diabetic (My Mother’s Perspective)

I asked my mother to write about my diagnosis and the years following. I’ve always wanted to get her perspective as being a mother of a Type 1 Diabetic. Now that I’m a mother, I can empathize with a mother’s love and how far it will go. I wanted her to share her thoughts, fears, and doubts. Now that I’m older and wiser I’ve been able to mourn the loss of the life that didn’t consist of diabetes—and close that chapter in my life. Finding out that diabetes has made me who I am. That when I thought I was handed the wrong card, it actually led me to where I was meant to be. It’s made every success, achievement, or victory just that much sweeter.


Mother Of a Type 1 Diabetic: (My Mother’s Perspective)

 

As a mother your first instinct is to love and protect, that is what I sought out to do. From the day she was born, I felt an overwhelming sense of obligation to fulfill.

But nothing prepared me for what life had in store. In 2002 when she was at the age of 12, I woke in the middle of the night to my child rocking in our recliner. I found it quite odd and I asked: “Brittany what’s wrong”? She replied, “mom I have no saliva and I’m very thirsty”. I knew then something was terribly wrong.

I took her of course to the emergency room. We sat there for what seemed like an eternity. I was told she had to be transported to All Children’s Hospital. Her blood sugar was over 900! By the grace of GOD, she didn’t slip into a coma. That was the day that changed our lives as we know it—even more so for hers.

It felt like someone ran me over. “Type 1 diabetic?” I asked in disbelief. “For how long?” Forever I was told. I didn’t know what to do. I was now a mother of a Type 1 Diabetic, and trying to process all of this at once. I knew nothing about this disease, for this was all new to me. This child that I vowed to protect, I couldn’t protect her from this. I felt like I had failed her and gave her this burden. I didn’t know quite how to feel. I was angry, hurt, and utterly scared for her.

It was life changing. I didn’t know how to keep it together but to see her face look at me, all I knew was that she needed me for strength. I watched her sleep every night, I set my alarm clock because I had to wake her to make sure her blood sugar didn’t drop. I was terrified! This child is my world and I learned quickly how serious this was.

As she grew older of course, like any teenager would she resented being a Type 1 Diabetic. It’s hard enough trying to understand life especially when you’re coming into your own. There’s enough pressure on kids and I tried understanding the pain of what she was feeling. No one her age that she knew was going through this. Having to take injections every day and checking her blood sugar several times a day. Being a mother of a Type 1 Diabetic was hard especially when she was growing up. I knew how difficult it was for her during these years being a Type 1 Diabetic. I wanted to take this from her but I couldn’t.

She was rebellious as all teenagers but more so in the fact, I don’t think she felt normal or understood. I watched her go into the very dangerous low numbers. It was tough because she was incoherent, I couldn’t get her to eat or drink anything. I would call the paramedics and it would take sometimes 20 min. for my baby to come back. There’s nothing more frightening in the world to fear that your child could slip away from your fingertips in the blink of an eye.

It is an absolute life changer, however, it’s not a death sentence. I’m truly grateful we survived those close calls. Looking back I wish I had educated myself more, was involved in support groups and learned more about diabetic cooking tips. I could have never planned for this, but I dealt the best I could and stayed strong for her.

My beautiful daughter has overcome huge obstacles and knows the adversity and the many challenges of this disease. I admire her for her strength and her ability to turn a negative into a positive. Her beauty not only radiates on the outside but on the inside. Her devotion to this cause is not only helping those who need the support, education but also striving for a cure.

Mother Of a Type 1 Diabetic: (My Mother's Perspective)I know that because of her energy and drive, she’s going to make a difference. I believe she has found a purpose in this life—that some of us search for in a lifetime.

To all those battling diabetes you’re not alone in this fight.


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