Tag: type 1 diabetes cure

What I’ve Learned From My Child Who Battles Type 1 Diabetes

Posted on by thediabeticjourney.com

By: Kirsten White

I learned how to be brave.
I learned how to stay strong.
I learned how to stare fear in the face with a giggle and a smile.
I learned what life is all about.
I learned what a hero really is.
I learned what a fighter does.
I learned what courage feels like.
I learned what unstoppable means.

I am the mother, I am supposed to teach my son these things.

But this T1D life has brought a new perspective. The long sleepless nights. The math skills I never knew I possessed. The gut wrenching fear of highs and lows, pertaining to both blood glucose readings and the events of the day.

The planning. The prescriptions. The doctors appointments. The technology. The sticks and pokes, and new things to carry on his body. He has faced them all with a smile.

Even on our three day stay in the hospital at diagnosis, he was running and playing with a smile, and singing, his favorite country stars songs, Jamey Johnson to everyone. He was the talk of the hospital wing.

He shows off his gear with pride now everywhere we go. He gets excited to see kids wearing gear like his at all the events we attend to raise money and awareness. He hasn’t let a thing stop him. He even shows off his Tae Kwon Do skills wearing his gear to win his first trophy.

I want him to always have such a bright and happy outlook on life. To grow and learn about his disease and to educate others. I pray nothing in this life will ever put a damper on those big blue eyes, and those dimples.

Yes, my three year old has been the tough one, the strong one, the brave one.

He has taught my family how life should be faced no matter what is thrown at you. He is my hero, better than Batman. For the rest of my life I will fight along side him until there is a cure! 

 

Perfection Does Not Exist In a Life With Diabetes

Perfection Does Not Exist With Diabetes -

Posted on by thediabeticjourney.com

Perfection Does Not Exist With Diabetes -

By: Christina Blackmon

15 years ago my life changed forever when I was told I had Type 1 diabetes.

I didn’t even know what diabetes was. I think I thought it meant you can’t eat sugar anymore. Little did I know that when I turned 20 years old my pancreas unexplainably stopped working properly and that would mean that my entire life would now depend on a hormone called insulin being injected into my body for the rest of my life.

Without those insulin injections I would die.

Little did I know that for the rest of my life I would be completely dependent upon this hormone. I also had no idea that my days thereafter would consist of being measured 8-10 times per day by a number. A number I get from pricking myself. Knowing that important number so that I can mathematically calculate how much insulin to inject to maintain good blood glucose range based on a formula that changes hourly without notice.

I also had no idea how unpredictable and unreliable my body would be and that there would be factors outside my control that dictated what my blood glucose levels would be despite eating and calculating “correctly”.

That my blood glucose would go up and down like a roller coaster ride and effect every fiber of my being. That sometimes I would want to crawl out of my own skin to escape the pain I was enduring. That I would go from being completely calm and rational to completely angry and irritable. That my pain would be invisible to others because it’s all happening internally without notice to anyone else.

There is no exact science or prescription to manage diabetes and everyday is a guessing game. Knowledge became my power and I studied and researched everything I could about this unforgivable disease. I found that it’s high maintenance and takes no breaks or vacations.

But I also found some tools that would help me. Tools like an insulin pump and continuous glucose monitor that could help me manage every second, every minute, every hour of every day for the rest of my life.

There is no cure for type 1 diabetes. I will always be dependent upon insulin.

Even with my tools - just like every piece of technology they fail me. But despite this disease I have 2 beautiful healthy kids and one on the way and no diabetic complications. Some days I feel so strong like I can do anything then others I lack the motivation to keep going.

But I never give up. I keep fighting and will keep fighting till there’s no fight left in me.

I don’t ever see any other option. I’m very thankful for the tools I have to manage this disease with everything I have and love when I can encourage or inspire other diabetics to do the same.

People ask me all the time is your diabetes controlled and I just want to laugh…what does that even mean??!! I just always say it’s not perfect and will never be. I don’t try to maintain perfection because diabetes means having bad days. I try to have more good than bad days and not focus on perfection.

Perfection does not exist in a life with diabetes.