My Journey With a Type 1 Diabetic

My Journey With a Type 1 Diabetic

My Journey With a Type 1 Diabetic

Written by: Mitchell Jacobs

I remember the first time I met Brittany, it was like yesterday. She was this cute, bubbly, giggly girl. But mostly what I remember is how beautiful I thought she was. We began dating when I was only 19, I was fresh out of high school without a clue of what the world was or even what diabetes was.

All I knew was my pickup truck, my dog Petey and this girl I couldn’t stop thinking about. Then one day I was with her and she introduced me to this disease I had never been familiar with. Known as Type 1 Diabetes. We were out to lunch like any couple would be and Brittany began to explain to me the details of her disease. I didn’t know anything, and at the time it didn’t really phase me much either.

As months passed we moved in together. This is when I really started to see how ugly of a disease Type 1 Diabetes really is. Her family had recently dropped her from the insurance and Brittany and I began to feel the repercussions of it, barely being able to afford food, let alone insulin.

I began to see Brittany’s blood sugars crashing to lows so severe that she would become unconscious. I was having to wrestle with my girlfriend going from normal to extremely combative to unconscious, and having to call 911, all within an hour. I was flabbergasted by this disease. “What in the HELL was going on!” Why is her blood sugar so wacky and why can’t we figure this out?”

I remember becoming so involved in trying to figure this disease out and be as supportive as I possibly could. One day she had an appointment at the endocrinologist’s office, and I stayed up the whole night thinking about questions to ask this Doctor, so I could write them down in a notebook. I needed to know how to fix this disease. “it’s simple” I thought, the blood sugars are numbers, carbs are numbers; “there has to be an answer to this equation.” I was wrong. I soon realized how complex diabetes was and that I couldn’t fix “it”. I couldn’t do anything but be her rock.

We continued to live our life from hospital visit to hospital visit, DKA, and many close calls. We were trying to be 20 something-year-olds, going out having a good time and trying but barely managing this disease. In all honesty, I noticed times through our past that we tried to ignore the fact the Brittany wasn’t a “normal” girl. We would go out and be irresponsible while trying to ignore this MONSTER. When I finally realized that I was going to have to really step up for Brittany was when I had recently turned 22, Brittany and I went out for a few drinks at a local restaurant.

We went home and the next morning Brittany woke up to take her insulin. Which at the time she was taking a long lasting insulin while supplementing with a short acting insulin. Well, she took the short acting insulin on accident and I woke up to find her walking through the house. Pale white, sweating profusely, and incoherent. I immediately knew her blood sugar was low. Coffee was brewing, and the sugar was sitting out with a teaspoon already in the tupperware.

So I grabbed the teaspoon and coerced Brittany into taking the spoonful of sugar. This is when her grand mal seizure began. She clenched her teeth, her eyes rolled to the back of her head, and I grabbed her as she began to collapse, screaming for my mother nearby to come help and call the police. The minutes felt like hours waiting for the EMTs to arrive on the scene.

I can only remember crying this hard as a child. “What have I done, what am I doing to this girl?” I felt like I wasn’t doing the best that I could do. I became well aware of how fragile her life is every single day. Yet, she embodies such perseverance and courage that I’ve never seen before. I began to think about diabetes constantly and how I can help Brittany live a long life.

This is the person I want to spend my entire life with, and I better figure out how to keep her around. Shortly after this incident, I left for Naval boot camp, Brittany became my wife, the mother of my children and was able to get health insurance. She now has the best health care and products to assist her in managing this disease.

However, the battle may be easier, we have not won. I have been blessed with this woman. Whom I am so proud of for how far she’s come and for showing me not only her weaknesses but her inevitable strength. She has been the best thing that has ever happened to me. Thanks to her I am the man, the husband, and the father that I am. This journey has been paved with failures and victories but, it’s only the first chapter of my life with a Type 1 Diabetic.

When I vowed.. in sickness and in health, to love and to cherish, till death do us part.. I meant it.

Diabetes Isn’t a Punchline To Your Joke

Diabetes Isn’t a Punchline To Your Joke

For as long as I’ve had diabetes I’ve been battling the stigma associated with this disease. Even though diabetes has been around for such a long time, it’s still a hard wall to break down.

The ever so common assumptions:

Sugar causes diabetes

If I eat this — I’ll get diabetes

Diabetes is caused by being lazy, poor diet, and from being inactive.

All of which are FALSE

These assumptions place blame and guilt on those that could have never prevented getting the disease in the first place.

Yes, there are two different types of diabetes. Type 2, which the body isn’t producing enough insulin and diet and exercise play a role in management. But with Type 1 Diabetes an autoimmune disease (which I have) my body doesn’t produce insulin at all. There is nothing I did to cause it and there is no cure.

So this week on World Diabetes Day I came across a post by a popular food Facebook page (not mentioning names) but they posted a video named “The Diabetes Pizza”. My first thought was “oh this must be a nice healthy recipe”. WRONG. It was a video showing the toppings and ingredients that included things like: candy, bacon, and unhealthy food choices.

I was astonished that “this pizza” was representing diabetes as a punchline. Yes, I have a sense of humor and can enjoy a good laugh. But really, on World Diabetes Day of all days? Kind of ironic! It wasn’t the joke that bothered me. I get it. It’s the underlying message for others not aware of diabetes. This is diabetes awareness month after all. Diabetes is not a joke or a laughing matter.

Diabetes Isn't a Punchline To Your Joke

Say for example someone is not aware of diabetes and starts experiencing symptoms. Their first thought might be — “it can’t be diabetes because I eat healthy and I’m not overweight”. These stereotypes and misconceptions can inhibit someone’s perception of this disease and delay diagnosis which raises the risk of complications or death.

I went ahead and brought it to the attention of the diabetes community. Where one parent of a diabetic thought it would be a great idea to post memes and awareness facts on their post to get the message across and many other diabetics and family members soon followed. Yes, it seems redundant and pointless to some. But if at all it can save ONE life, that’s at that really matters.

The post was later taken down the following day, not sure as to why. But regardless, I think that was one small victory in our favor. Not because someone posted something funny about diabetes, and we just didn’t like it. But because we had a voice for diabetes. We raised awareness for a disease that is serious, life-threatening and affects our lives everyday.

It could have easily been a day where someone told a joke about diabetes where many are the brunt of the joke. But instead, it was a day where we stood up for our disease and risen above the stigma.

Happy Diabetes Awareness Month!

Let’s End Diabetes Stigma!

Trump's Plan To Replace Obamacare But Still Keep Those With Pre-existing Conditions Including Diabetes Covered

Trump’s Plan To Replace Obamacare But Still Keep Those With Pre-existing Conditions Including Diabetes Covered

Trump’s Plan To Replace Obamacare But Still Keep Those With Pre-existing Conditions Including Diabetes Covered

Following the election on November 8, many in the diabetes community are concerned and questioning their future healthcare coverage as President Elect Trump will enter the White House. The Affordable Care Act–Obamacare is presumed to be repealed and replaced as part of his 100 day plan.

The Affordable Care Act was implemented for many with pre-existing conditions as it provides insurance to over 20 million people; includhttps://en.wikipedia.org/wiki/Patient_Protection_and_Affordable_Care_Acting those with Type 1 Diabetes. It was intentioned to increase health insurance quality and affordability, lower the uninsured rate by expanding insurance coverage and reduce the costs of healthcare.

But as of late there has been an outcry over insurance premium costs rising. Costs have been steadily increasing over the past few years and will be expected to be even higher in 2017. Many health insurance plans such as UnitedHealth opted out of Obamacare due to hundered of millions of dollars in losses. Leaving those insured by Obamacare left with not as many options.

With the higher premiums and deductibles, many patients aren’t able to afford or recieve many benefits. Copayments are high and drug formularies are restrictive. Patients are often restricted to lower quality blood glucose meters and still have to come out of pocket up to (50% or more) after the deducticle for  durable medical equipment (DME) to manage Type 1 Diabetes; including insulin pumps, CGMs, and other diabetes medical equipement.

What what to expect next? That’s the question we are all wondering.

Will the diabetes community still be given access to healthcare despite pre-existing conditions?

The process to repeal this federal statute will need a supermajority by the Senate composed of 60 votes to overcome a filibuster. But Senate rules also allow bills to pass with a simple majority if they only relate to spending, a process known as reconciliation. Reconciliation bills need to be approved by a parliamentarian, who certifies that the content does indeed have budgetary impact. 

But in order to repeal there must be a replacement plan. While it’s in question whether or not this would cause millions with pre-existing conditions to lose health insurance altogether.

Trump has stated that he plans to take care of everyone, and to a higher degree that we are taken care of now. He states he will “not allow people to die on the sidewalks and the streets of our country” for lack of access to health insurance.

Here is the current position paper on health care reform as stated on Trump’s website:

Congress must act. Our elected representatives in the House and Senate must:

1. Completely repeal Obamacare. Our elected representatives must eliminate the individual mandate. No person should be required to buy insurance unless he or she wants to.

2. Modify existing law that inhibits the sale of health insurance across state lines. As long as the plan purchased complies with state requirements, any vendor ought to be able to offer insurance in any state. By allowing full competition in this market, insurance costs will go down and consumer satisfaction will go up.

3. Allow individuals to fully deduct health insurance premium payments from their tax returns under the current tax system. Businesses are allowed to take these deductions so why wouldn’t Congress allow individuals the same exemptions? As we allow the free market to provide insurance coverage opportunities to companies and individuals, we must also make sure that no one slips through the cracks simply because they cannot afford insurance. We must review basic options for Medicaid and work with states to ensure that those who want healthcare coverage can have it.

4. Allow individuals to use Health Savings Accounts (HSAs). Contributions into HSAs should be tax-free and should be allowed to accumulate. These accounts would become part of the estate of the individual and could be passed on to heirs without fear of any death penalty. These plans should be particularly attractive to young people who are healthy and can afford high-deductible insurance plans. These funds can be used by any member of a family without penalty. The flexibility and security provided by HSAs will be of great benefit to all who participate.

5. Require price transparency from all healthcare providers, especially doctors and healthcare organizations like clinics and hospitals. Individuals should be able to shop to find the best prices for procedures, exams or any other medical-related procedure.

6. Block-grant Medicaid to the states. Nearly every state already offers benefits beyond what is required in the current Medicaid structure. The state governments know their people best and can manage the administration of Medicaid far better without federal overhead. States will have the incentives to seek out and eliminate fraud, waste and abuse to preserve our precious resources.

7. Remove barriers to entry into free markets for drug providers that offer safe, reliable and cheaper products. Congress will need the courage to step away from the special interests and do what is right for America. Though the pharmaceutical industry is in the private sector, drug companies provide a public service. Allowing consumers access to imported, safe and dependable drugs from overseas will bring more options to consumers.