This Disease Is a Catch-22: Pay The Price Or Pay With My Life

This Disease Is a Catch 22 - Pay The Price Or Pay With My Life

This Disease Is a Catch-22: Pay The Price Or Pay With My Life

By: Kayla Bushue

 

Almost 15 years ago I was diagnosed with type 1 diabetes – an autoimmune, incurable disease.

I’ve been pretty lucky thus far. I didn’t take care of myself early on or really anytime; except for during my pregnancy and the time I’ve had my insulin pump. But I did some number crunching tonight just for funsies.

Per month BEFORE insurance the cost to keep me on planet earth is $1,353.37. That’s for insulin, infusion sets, and test strips alone not including hospital stays due to DKA. Now insurance foots a lot of that bill which I’m thankful for.

Credit: Kathy Austin

But why when I live in one of the top countries in the world does it cost me $16,240.44 per year to stay ALIVE???

I understand there are places that don’t have access to the healthcare that I have. Don’t get me wrong I’m grateful I have access to insulin, my pump, and test strips that keep me here everyday. I also understand the older I get the more complications I will have due to this terrifying and one day terminal disease.

But here is my perspective.

I pay a hefty chunk of change to keep myself thriving, OR I skimp by on the bare minimums and deal with the complications. This disease is a catch 22 – pay the price or pay with my life.

Credit: Kathy Austin

Something about having a disease like this doesn’t seem right. I either pay for my medicine or I don’t and deal with the death sentence. I just don’t get it.

In February my approximate cost over the last 15 years is $243,606.60. It’d be nice to have 2017 Aston Martin Vanquish in my driveway; rather than that almost quarter of a million going to keeping me alive.

Here is where you can learn more about the cost of type 1 diabetes, how to get involved, and how to help protect our rights for affordable healthcare.



 

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2 thoughts on “This Disease Is a Catch-22: Pay The Price Or Pay With My Life

  1. It would also be nice if the billions of dollars donated for a type1 cure were actually going towards a type1 cure.

    1. Blame greedy pharma, capitalism and politicians in love with money that care more for business profits and insurance companies earnings more than free health care for all.
      The JDRF has raised over $2B but the cures are coming within 10-years or less.
      I am a 44 year old male diagonesed at 7. Trust me if someone is poor he will die without adordable care protections for all humans like us.

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